It’s not always easy to bring up how you’re feeling. Here are some conversation starters to help you get the most out of conversations with your doctor.

• “If my insulin-like growth factor 1 (IGF-1) level is in the normal range, but I still feel symptoms, what does that mean?”
• “I’ve tracked my symptoms. Here’s what I’ve noticed…”
• “I am having some issues managing my treatment. What can be done about that?”
• “I want to manage both my IGF-1 level and my symptoms. What are my options?”
• “Is my IGF-1 level in the target range?”

What’s the reality of your symptom control? Before your next appointment, jot down your symptoms, how intense they are, and how often they occur.

Your doctor won’t know what symptoms you are experiencing unless you tell them. Talk to your doctor, so they can help get your acromegaly controlled.

Your voice matters in your treatment plan. Here’s how to make sure you’re heard.

• Be specific: instead of saying “I feel bad,” describe exactly what’s wrong (eg, “I wake up exhausted every day” or “My joints ache constantly”)
• Bring support: a friend or family member can help advocate for you and remember key details from the visit
• Ask questions: if something isn’t clear, ask your doctor to explain it in simple terms
• Push for solutions: if your symptoms persist, ask about adjusting your treatment
• Follow up: if things don’t improve, schedule another visit to discuss next steps