Your Acromegaly Reality Tool Kit
Access videos, patient support services, and other helpful tools to help you better manage your acromegaly symptoms and take greater control of your treatment journey.
Ellen, living with acromegaly.
Acromegaly realities
In these powerful videos, people living with acromegaly open up about their journey—from diagnosis to treatment, and daily challenges to hopes for the future. Whether you’re newly diagnosed or years into your experience, these stories offer honesty, inspiration, and the reminder that you’re not alone.
The diagnosis journey
Tony, Ellen, and Wendy share the story of their diagnosis and how they felt after they learned they had acromegaly.
Managing symptoms and treatment
Wendy and Ellen discuss managing painful symptoms while working to make sure their acromegaly is controlled.
Advocating for yourself
Wendy and Tony talk about the importance of community, support, and being your own advocate.
IGF-1 calculator: understand your numbers
Do you want a more complete picture of your IGF-1? The IGF-1 calculator is a personalized tool that analyzes some basic data—such as age, sex, and your current lab results—to help put your IGF-1 number into perspective.
Reality reads
Acromegaly Reality Check Discussion Guide
Not sure how to bring up your symptoms or IGF-1 levels at your next appointment? This guide is the first step in becoming your own best advocate. Have the right conversations with your doctor and your care team so you can get the treatment you need.
Inside Acromegaly Reality
This magazine brings together everything you need to feel informed and inspired. Inside are interviews featuring people living with acromegaly, easy-to-understand information about IGF-1 and treatment goals, and practical lifestyle tips to help you manage everyday life with acromegaly.
CrinetiCARE is an online support service for people with acromegaly and their healthcare providers. Whether you’re newly diagnosed or further along on your acromegaly journey, you’ll find a caring community, reliable information, and guidance to help you thrive.
Live nurse chat
Ask questions, get answers, and learn about programs and resources for people with acromegaly.
Share Your Voice™ program
Your experience matters. Add your voice to the conversation and help us better understand acromegaly.
Discover an online support group where you can connect with other patients to discuss issues important to you.
