Treatment support
The acromegaly balancing act
Keeping up with, starting, or even restarting treatment can be challenging. Between complex dosing schedules, side effects, and breakthrough symptoms, staying on track isn’t always easy.
“If my acromegaly was truly controlled, I would be out in the world more. I would be living a fuller life. I would be seeing people more and be more active.”
Ellen
Living with acromegaly.
Both sides of acromegaly control matter
Living with acromegaly can be exhausting. It can sap your energy, make daily life harder, and take a toll on your well-being. If your symptoms aren’t well-managed, it can feel like your body is working against you.
But here’s the good news: when both your hormone levels, like insulin-like growth factor 1 (IGF-1), and symptoms are well-controlled, life can feel more stable.
In a study, about 50% of people on the most commonly used acromegaly treatments occasionally skipped or reduced doses*
From a survey of adults with acromegaly treated at 2 hospitals.*
Take charge of your health
Your treatment shouldn’t feel like another burden. If you’re struggling with side effects, injections, or forgetting doses, talk to your doctor.
Regular check-ins can lead to adjustments that make treatment easier to stick with—and help you feel better.
Speak up!
Your doctor can see your IGF-1 level, but they don’t know if you’re experiencing symptoms unless you say something. Speak up about your symptoms to take control of your treatment and improve your quality of life.
You deserve to feel your best.
Get an acromegaly reality check
Answer a few quick questions to find out how well your acromegaly is managed.
1 of 3
Which of the following best describes your current IGF-1 level?
2 of 3
How intense have your acromegaly symptoms felt over the past month?
Drag the sliders to best describe the intensity of each symptom.
3 of 3
What are the top challenges you face living with acromegaly?
Select all that apply.
Unlock your quiz results and so much more
Ellen, living with acromegaly.
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Thanks for taking the acromegaly reality check!
See your results below and find out what they might mean for your acromegaly and your treatment plan.
IGF-1 and symptom intensity
IGF-1 status
Symptom intensity
The takeaway: IGF-1 levels and symptom intensity
Quality-of-life challenges
The takeaway
Access the Acromegaly Reality Tool Kit for more insights
Inside the Acromegaly Reality Tool Kit, you’ll find:
- Real stories from people living with acromegaly
- Helpful tools like the IGF-1 calculator and doctor finder
- Lifestyle tips and discussion guides to help you advocate for yourself
Wendy, living with acromegaly.
True control takes two: IGF-1 + symptoms
Keeping your IGF-1 level in check is key, but real success comes from managing your IGF-1 and your symptoms. Understanding both could help you take the next step toward better control.
Real tools.
Real stories.
Real resources made for you
Become part of Acromegaly Reality today, and unlock personalized tools to help you navigate life with acromegaly. Gain immediate access to resources designed to support and inspire you at every step of your journey.
This is available only to those who sign up. Don’t miss your chance to feel more informed, empowered, and connected.
Tony, living with acromegaly.
Looking for additional acromegaly support?
Dedicated services are here to help
Chat one-on-one with a nurse who understands acromegaly
Find doctors who specialize in acromegaly and its symptoms
Connect with the acromegaly community
Call 844-CRN-HELP or visit crineticare.com to get started.
*Siegel S et al. Pituitary. 2024;27(4):403-415.